Links

PATIENT & ADVOCACY GROUPS

Canada

Lung Cancer Canada – Lung Cancer Canada is a national charitable organization that serves as Canada’s leading resource for lung cancer education, patient support, research, and advocacy.

Bonnie J Addario Lung Cancer Foundation -ALCF is one of the largest philanthropies (patient-founded, patient-focused, and patient-driven) devoted exclusively to eradicating Lung Cancer through research, early detection, education, and treatment.

Free to Breathe – We are a partnership of lung cancer survivors, advocates, researchers, healthcare professionals and industry leaders. And we are united in the belief that every person with lung cancer deserves a cure.

Livelung.org -This LiveLung website is a virtual neighborhood created by and for the lung cancer community. LiveLung is a community environment featuring organizations dedicated to improving the lives of people battling lung cancer. (Formerly The Dusty Joy Foundation)

LUNGevity – LUNGevity is changing outcomes for people with lung cancer through research, education, and support.

Lung Cancer Alliance – Since 1995, we have played a critical role in every major advance – changing how we support, talk about, detect and treat the disease – and turning those impacted into survivors. Our mission is saving lives and advancing research by empowering those living with and at risk for lung cancer.

Mesothelioma Veterans Center – United States Military veterans make up over 30% of all patients with malignant mesothelioma, caused by exposure to asbestos. Learn more about your benefits options with VA-accredited claims agents, all free of charge.

Mesothelioma Guide – Our mission is to guide mesothelioma patients and their loved ones toward answers, care options, and free health solutions that improve their lives.

MesotheliomaHelp.org – A comprehensive resource for those affected by asbestos-related diseases, such as mesothelioma, lung cancer and asbestosis.

Pleural Mesothelioma – Asbestos exposure causes thousands of cases of pleural mesothelioma in the United States each year, and our mission is to help the families affected by this cancer. Our organization offers free assistance and resources to anyone coping with pleural mesothelioma.

International

Global Lung Cancer Coalition – By serving as the international voice of lung cancer patients, the Global Lung Cancer Coalition is committed to improving disease outcomes for all.

Asia The Japan Lung Cancer Society – The Japan Lung Cancer Society aims at promoting diverse research on lung cancer and its related fields, as well as helping to diffuse knowledge and understanding of the disease among society. (Site in Japanese and English)

China (Hong Kong) Living With Lung Cancer Asia – The objectives of the campaign are to support patients living with lung cancer, sending them a breath of hope and good wishes, and helping them fight against the disease. (Site in Cantonese, Mandarin and English, Publication in English and Cantonese)

Singapore Singapore Cancer Society – The Lung Cancer Support Group is a patient support and advocacy for people living with lung cancer and those at risk of the disease. It provides a platform to meet, interact, receive support, and share with others who have “been there” and experienced the array of emotions that come with a diagnosis of cancer.

Australia Lung Cancer Network – Lung Cancer Network Australia (LCNA) aims to empower lung cancer patients, their families and carers with reliable and up to date information, with support and advocacy, no matter who they are and where they live.

Europe ALCASE Italia – The association ALCASE Italia is the first non-profit Italian organization dedicated exclusively to the fight against lung cancer. It was set up to assist scientific research, increase professional training of healthcare professionals, improve the quality of medical and nursing care, support sufferers and their families, and promote awareness of the severity of the disease. (Site in Italian)

Longkanker Nederland – Lung Cancer The Netherlands is a non-profit professional patient organization for anyone with lung cancer: the patient, neighbors and survivors. We focus on support, education, anti-stigma for people living with lung cancer, prevention, care, and survivorship. (Site in Dutch)

Lung Cancer Europe – Lung Cancer Europe is the voice of lung cancer patients, their families and survivors at a European level. LuCE provides a European platform for already existing lung cancer patient advocacy groups and supports the establishment of national lung cancer patient groups in different European countries where such groups do not yet exist.

Lung Cancer Förenigen – The Lung Cancer Association was established in 2004, by patients and doctors, and today consists of several local associations. We are an independent association for patients, relatives, and professionals. Our primary task is to support both patients and relatives – in-group discussions and by telephone, being there and helping when needed. Together we work on lung cancer by educating and creating opinions for the latest therapies and major research grants. (Site in Swedish)

NA-VDIH – The purpose of NA-VDIH is to significantly affect the incidence of lung cancer and improve the treatment of this disease in Slovenia. We focus on smoking control and prevention, early detection of lung cancer, and support for patients. In addition to raising public awareness and helping patients with lung cancer, we are also preparing a portal for health professionals. (Site in Slovenian)

Portugese Association for the Fight Against Cancer of the Lung (PULMONALE) – Aims to provide counseling and support for patients, to promote screening and early diagnosis, provide information to patients and caregivers, improving and extending medical care, and to educate and disseminate information about the disease to the public. (Site in Portugese)

Women Against Lung Cancer in Europe (WALCE) – WALCE is a non-profit organization, established in 2006 in Italy and active internationally, with the aims to support and help lung cancer patients and their families, and to circulate accurate, correct and updated information about the disease in terms of prevention, diagnosis and therapy. WALCE is also focused on providing educational and advocacy initiatives to raise awareness and reduce the stigma about lung cancer, on promoting anti-tobacco youth campaigns and it is committed on research projects. (Site in English, Italian, and Spanish)

South America

Mexico Respirando Con Valor – Respirando con Valor es una asociación civil formada por pacientes con cáncer de pulmón, familiares y profesionales de la salud. Esta asociación se formó desde Diciembre de 2009 y desde entonces ha trabajado por y para los pacientes sin ningún fin de lucro, proporcionando información y asesoría sobre la enfermedad, avances científicos, alternativas de tratamiento y derechos de los pacientes. (Site in Spanish)

Roy Castle Lung Cancer Foundation – The Charity has two purposes; saving lives and supporting people affected by lung cancer (including carers and families) and we do this through our three key activities. Research, Support, and Prevention.

United Kingdom Lung Cancer Coalition – The UK Lung Cancer Coalition (UKLCC) is a coalition of the UK’s leading lung cancer experts, senior NHS professionals, charities and healthcare companies. Established in November 2005 to help to bring lung cancer out of the political, clinical and media shadow the organisation’s long-term vision is to double one year lung cancer survival by 2015 and five year survival by 2020

INFORMATION & CLINICAL TRIALS

IASLC: International Association for the Study of Lung Cancer – The IASLC Foundation was established in 2014. The purpose of the IASLC Foundation is to facilitate educational and scientific purposes within the IASLC, notably to fund fellowships and young investigator awards for researchers around the globe working to find new ways to conquer thoracic malignancies. The office of the Foundation is within the IASLC Headquarters in Denver, CO, USA.

Cancer Grace – GRACE is a nonprofit organization that was developed as a means of improving the overall medical care for cancer patients by democratizing cutting edge information on optimal cancer management and providing it directly to patients. (Global Resource for Advancing Cancer Education)

Global Lung Cancer Coalition – Established in 2001, the GLCC comprises 28 non-government patient organizations from Argentina, Australia, Bulgaria, Canada, Denmark, France, Germany, Ireland, Italy, Japan, Netherlands, Norway, Slovenia, Spain, Sweden, Switzerland, UK and US. The GLCC is committed to improving disease outcomes for all lung cancer patients and aims to address the following issues: place lung cancer on the global healthcare agenda; change public perceptions and lessen the stigma of lung cancer; empower lung cancer patients to take an active role in their care; effect change in legislative or regulatory policies to optimize treatment and care.

Canadian Cancer Society – The Canadian Cancer Society is a national, community-based organization of volunteers whose mission is the eradication of cancer and the enhancement of the quality of life of people living with cancer.

National Cancer Institute – The NCI coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.

Clinical Trials.gov – ClinicalTrials.gov is a registry and results database of publicly and privately supported clinical studies of human participants conducted around the world. Learn more about clinical studies and about this site, including relevant history, policies, and laws. (A service of the U.S. National Institutes of Health)

National Comprehensive Cancer Network – The National Comprehensive Cancer Network^® (NCCN^®), a not-for-profit alliance of 27 of the world’s leading cancer centers devoted to patient care, research, and education, is dedicated to improving the quality, effectiveness, and efficiency of cancer care so that patients can live better lives.

Translational Lung Cancer Research – TLCR is an international, peer-reviewed, open-access journal, which was founded in March 2012. TLCR is indexed by PubMed/PubMed Central and the Chemical Abstracts Service (CAS) Databases. It is published quarterly the first year, and published bimonthly since February 2013. It provides practical up-to-date information on prevention, early detection, diagnosis, and treatment of lung cancer. Specific areas of its interest include, but not limited to, multimodality therapy, markers, imaging, tumor biology, pathology, chemoprevention, and technical advances related to lung cancer.

Australasian Lung Cancer Trials Group – ALTG is a multi-disciplinary organization dedicated to reducing the incidence, morbidity and mortality of lung and other thoracic cancers and improving the quality of life of these patients, carers and families in Australia and New Zealand through the coordination and facilitation of high quality clinical research.

Canadian Partnership Against Cancer – The Canadian Partnership Against Cancer is an independent organization funded by the federal government to accelerate action on cancer control for all Canadians. The Partnership works with cancer experts, charitable organizations, governments, cancer agencies, national health organizations, patients, survivors and others to implement Canada’s cancer control strategy.

Cancerview.ca – cancerview.ca connects Canadians to online services, information and resources for cancer control. Through its collaborative tools, cancerview.ca also links people in the Canadian cancer community to each other.

American Society of Clinical Oncology – Conquering cancer through research, education, and promotion of the highest quality patient care.

European Society of Clinical Oncology – ESMO is the leading European professional organisation for medical oncology. Comprising more than 15,000 oncology professionals from over 130 countries, we are the society of reference for oncology education and information. We are committed to supporting our members to develop and advance in a fast-evolving professional environment.

Lung-Map – A first-of-its-kind clinical trial model that uses a multi-drug, targeted screening approach to match patients with sub-studies testing investigational new treatments based on their unique tumor profiles.

SOCIAL MEDIA

#LCSM, #LCAM

ADDITIONAL RESOURCES

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