PATIENT & ADVOCACY GROUPS

Canada

Lung Cancer Canada – Lung Cancer Canada is a national charitable organization that serves as Canada’s leading resource for lung cancer education, patient support, research, and advocacy.

US

LUNGevity – LUNGevity is changing outcomes for people with lung cancer through research, education, and support.

Free to Breathe – We are a partnership of lung cancer survivors, advocates, researchers, healthcare professionals and industry leaders. And we are united in the belief that every person with lung cancer deserves a cure.

Livelung.org -This LiveLung website is a virtual neighborhood created by and for the lung cancer community. LiveLung is a community environment featuring organizations dedicated to improving the lives of people battling lung cancer. (Formerly The Dusty Joy Foundation)

Bonnie J Addario Lung Cancer Foundation -ALCF is one of the largest philanthropies (patient-founded, patient-focused, and patient-driven) devoted exclusively to eradicating Lung Cancer through research, early detection, education, and treatment.

Lung Cancer Alliance – Since 1995, we have played a critical role in every major advance – changing how we support, talk about, detect and treat the disease – and turning those impacted into survivors. Our mission is  saving lives and advancing research by empowering those living with and at risk for lung cancer.

Pleural Mesothelioma – Asbestos exposure causes thousands of cases of pleural mesothelioma in the United States each year, and our mission is to help the families affected by this cancer. Our organization offers free assistance and resources to anyone coping with pleural mesothelioma.

Mesothelioma Veterans Center – United States Military veterans make up over 30% of all patients with malignant mesothelioma, caused by exposure to asbestos. Learn more about your benefits options with VA-accredited claims agents, all free of charge.

MesotheliomaHelp.org – A comprehensive resource for those affected by asbestos-related diseases, such as mesothelioma, lung cancer and asbestosis.

International

Australia  Lung Cancer Network – Lung Cancer Network Australia (LCNA) aims to empower lung cancer patients, their families and carers with reliable and up to date information, with support and advocacy, no matter who they are and where they live.

Europe  Lung Cancer Europe – Lung Cancer Europe is the voice of lung cancer patients, their families and survivors at a European level. LuCE provides a European platform for already existing lung cancer patient advocacy groups and supports the establishment of national lung cancer patient groups in different European countries where such groups do not yet exist.

Global  Lung  Cancer Coalition – By serving as the international voice of lung cancer patients, the Global Lung Cancer Coalition is committed to improving disease outcomes for all.

Mexico  Respirando Con Valor – Respirando con Valor es una asociación civil formada por pacientes con cáncer de pulmón, familiares y profesionales de la salud. Esta asociación se formó desde Diciembre de 2009 y desde entonces ha trabajado por y para los pacientes sin ningún fin de lucro, proporcionando información y asesoría sobre la enfermedad, avances científicos, alternativas de tratamiento y derechos de los pacientes. (Site in Spanish)IAS

INFORMATION & CLINICAL TRIALS

IASLC: International Association for the Study of Lung Cancer – The IASLC Foundation was established in 2014. The purpose of the IASLC Foundation is to facilitate educational and scientific purposes within the IASLC, notably to fund fellowships and young investigator awards for researchers around the globe working to find new ways to conquer thoracic malignancies. The office of the Foundation is within the IASLC Headquarters in Denver, CO, USA.

Cancer Grace – GRACE is a nonprofit organization that was developed as a means of improving the overall medical care for cancer patients by democratizing cutting edge information on optimal cancer management and providing it directly to patients. (Global Resource for Advancing Cancer Education)

Canadian Cancer Society – The Canadian Cancer Society is a national, community-based organization of volunteers whose mission is the eradication of cancer and the enhancement of the quality of life of people living with cancer.

National Cancer Institute – The NCI coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.

Clinical Trials.gov – ClinicalTrials.gov is a registry and results database of publicly and privately supported clinical studies of human participants conducted around the world. Learn more about clinical studies and about this site, including relevant history, policies, and laws. (A service of the U.S. National Institutes of Health)

National Comprehensive Cancer Network – The National Comprehensive Cancer Network® (NCCN®), a not-for-profit alliance of 27 of the world’s leading cancer centers devoted to patient care, research, and education, is dedicated to improving the quality, effectiveness, and efficiency of cancer care so that patients can live better lives.

Canadian Partnership Against Cancer – The Canadian Partnership Against Cancer is an independent organization funded by the federal government to accelerate action on cancer control for all Canadians. The Partnership works with cancer experts, charitable organizations, governments, cancer agencies, national health organizations, patients, survivors and others to implement Canada’s cancer control strategy.

Cancerview.ca – cancerview.ca connects Canadians to online services, information and resources for cancer control. Through its collaborative tools, cancerview.ca also links people in the Canadian cancer community to each other.

American Society of Clinical Oncology – Conquering cancer through research, education, and promotion of the highest quality patient care.

European Society of Clinical Oncology – ESMO is the leading European professional organisation for medical oncology. Comprising more than 15,000 oncology professionals from over 130 countries, we are the society of reference for oncology education and information. We are committed to supporting our members to develop and advance in a fast-evolving professional environment.

Lung-Map – A first-of-its-kind clinical trial model that uses a multi-drug, targeted screening approach to match patients with sub-studies testing investigational new treatments based on their unique tumor profiles.

SOCIAL MEDIA

#LCSM, #LCAM

 

Please report any dead links via email